Celiac Sprue Association - Wichita, KS

November Newsletter now available.

2011-11-13T16:50:00.002-06:00

Here is the link to the November newsletter and the 3 attachments that go with it.

Newsletter:

http://www.box.net/s/ssnrorra4l5hfldjig2n

Tax deductions information:

http://www.box.net/s/qus3xlgbz87drey6cvqm

Tax deductions spreadsheet:

http://www.box.net/s/9c9ilsyhzebyyfn7200v

Pizza Menu from Granite City:

http://www.box.net/s/0jbucs9ze360mznbyo4u

The newsletter should be out in the mail soon.

Food for Thought GF Thanksgiving

2011-11-10T22:24:00.001-06:00

Email from Food for Thought:

Hello!

We wanted to share with your group that our annual gluten-free Thanksgiving tasting will be this Saturday, November 12th, from 11 a.m.-4 p.m.!

Thanks,
Jennifer

Food For Thought, Inc.
2929 E. CentralWichita, KS 67214
"we've made getting healthy fun, since 1971!"
316.683.6078 (phone)316.683.4141 (fax)
www.foodforthoughtwichita.com

Celiac Booth at GreenAcres Market

2011-09-16T19:18:00.002-05:00

A wide selection of gluten-free food is available at GreenAcres Market, 8141 E 21st, as well as frequent classes and demonstrations on various kinds of healthy eating. On Saturday October 15, they are sponsoring a special gluten free day and have offered the Wichita celiac chapter a booth. If you are willing to help answer questions and give out information for one hour between 11a and 3p, please contact Gayle Cloud (788-2531, takncare4@yahoo.com) for more information and to specify which hour you might prefer. We would like 2 or 3 people there each hour.

August 2011 Newsletter now available!

2011-08-20T07:40:00.002-05:00

Here is the link:

http://www.box.net/shared/rvvefhd93yhvxlki23cv

I will also be updating the Dates to Remember and posting about some upcoming events over the weekend. So be sure to check back!

Thanks!

Staci

May 2011 Newsletter is now available!

2011-05-12T09:04:00.000-05:00

Here is the link to download:

http://www.box.net/shared/f9mnzygok7

Thanks!

Staci

March 2011 Newsletter available!

2011-03-09T15:31:00.002-06:00

The March newsletter is now available for download.

Here is the link:

http://www.box.net/shared/6dd3l3qv3h

Link to the insert:

http://www.box.net/shared/kpegnyqsis

Newsletters should arrive in the mail soon.

Thanks!

Staci

November Newsletter now available!

2010-11-16T08:31:00.001-06:00

Here is the link:

http://www.box.net/shared/56752a0ugt

Along with the 2 inserts:

http://www.box.net/shared/0k4m19j5j0

http://www.box.net/shared/koh1klvmag

Thanks!

Staci

August Newsletter Available!

2010-08-25T16:04:00.001-05:00

The August newsletter is now available for download.

Here is the link:

http://www.box.net/shared/9jvg9la4bp

It should be received in the mail shortly.

Thanks!

Staci

Food for Thought

2010-05-24T09:15:00.001-05:00

Food for Thought will be holding a gluten free seminar on June 17 from 7-830 pm.

Here is the link for more information:

http://www.box.net/shared/g289bqqmyh

Thanks!

Staci

May Newsletter

2010-05-22T19:40:00.001-05:00

The May newsletter is now available for download.

Here is the link:

http://www.box.net/shared/x4irjsdvml

It should be received in the mail shortly.

-Staci

March newsletter

2010-02-20T17:19:00.001-06:00

The March newsletter is now available for download. It should be received in the mail within the next couple weeks.

Here is the link:

http://www.box.net/shared/qmt8h0uy8u

Thanks!

Staci

Godfather's Prices

2009-10-28T12:43:00.002-05:00

Just FYI, I contacted the store for the prices. If I read the flyer right there are 6 slices to a pizza. I think it is a medium-type size but guess we'll find out once someone orders!

Prices:

Classic Combo $14.59
All Meat Combo $14.59
Cheese $9.59
Beef $10.84
Sausage $10.84
Pepperoni $10.84

Not too bad...

-Staci

Godfather's Pizza plus November newsletter

2009-10-28T11:02:00.003-05:00

Great news!

This is part of an email Ramona received from Godfather's National:

I am happy to announce that our Godfather's Pizza Location at 4840 S Broadway Wichita KS 67216 is now selling gluten-free pizzas. I have attached our informational brochure for your veiwing. There are six flavors to choose from. They come pretopped and individually wrapped to this location to ensure the safest product for our gluten-free customers. The store is not allowed to add any topping because of the possibility of cross contamination. This location has been trained to bake the gluten-free pizzas using seperate pans and utensils. They are available for dine-in, delivery or take and bake, 7 days a week, during regular business hours. We can also add them to catering orders.

Here is a link to the brochure:

http://www.box.net/shared/nhp2k7hoku

Also, the November newsletter is now available for download.

Here is the link:

http://www.box.net/shared/m44k4pxip3

And a link to an insert that will be included in the newsletter about possible tax deductions for gluten free foods:

http://www.box.net/shared/koh1klvmag

And a link to a worksheet that will be sent with the newsletter that is an example of a spreadsheet you could use to keep track for the tax deduction:

http://www.box.net/shared/0k4m19j5j0

The newsletter plus all inserts will be mailed out within the next couple weeks.

Thanks!

Staci

August newsletter now available for download!

2009-08-13T13:25:00.003-05:00

Here is the link to the August newsletter:

http://www.box.net/shared/1fs7jttnnn

Plus, a link to a handout that will be included in the newsletter:

http://www.box.net/shared/4zus5itnc4

They should be out in the mail in the next couple weeks.

Thanks!

Staci

May 2009 Newsletter now available for download!

2009-05-07T12:31:00.003-05:00

Here is the link to the May newsletter.

http://www.box.net/shared/6fmv90v7h9

It should be out in the mail within a couple weeks.

Thanks!

Staci

Potluck Rescheduled

2009-04-02T13:47:00.001-05:00

The potluck dinner of the Wichita Celiac Sprue Association support group that was supposed to happen on March 28th has been rescheduled for Saturday, April 18. It will be at the same place and the same time, East Evangelical Free Church at 1:00. The church is located at 14725 East Harry, about 1/3 mile east of 143rd street on Harry. It is on the south side of the street. Hope to see you there.

Potluck Canceled and Food For Thought may be

2009-03-27T13:49:00.004-05:00

Food for Thought may be closed Saturday due to the weather. If you are planning on going to the Gluten-Free day, please be sure to call first. This way you will not waste a trip.

Thanks for passing along the info Jana!

Also, I am checking with Ramona to see if the potluck is still on. I'll update this post as soon as I have additional information.

- Staci

3:15PM Just heard from Ramona, we are cancelling the potluck tomorrow. We will try to reschedule for a weekend in April.

Oklahoma City Celiac Event - Shelley Case

2009-03-02T14:33:00.003-06:00

Emails forwarded by Ramona:

The Oklahoma Celiac Support Group is hosting Shelley Case, R.D., fellow celiac, author and international celiac and nutrition expert on Saturday, March 14, 2009. We have scheduled the event Saturday afternoon to allow for out-of-town travelers to be able to attend this great event.

I would like to extend a personal invitation to each of you and your support groups. This is a fabulous opportunity and we would love for you to be a part.

Here is a link with more details:

http://www.okceliac.com/shelleycase.php

Please feel free to call me if you have any questions or need additional information.

Heather M. Cline
Oklahoma Celiac Support Group, President
CSA Region 2 Director
www.OKceliac.com

Link to pdf about the event:

http://www.box.net/shared/lo26zv0a88

February 2009 Newsletter

2009-02-11T16:07:00.002-06:00

Here is the link to the February newsletter:

http://www.box.net/shared/5481ydfb2m

It should arrive in the mail within the next couple weeks.

Thanks!

Staci

Plans for 2009

2008-11-25T18:50:00.002-06:00

The leadership group had our annual planning meeting at the end of October. We are currently planning 4 meetings and 4 CEOs for 2009. Once the dates and locations are confirmed I will add them to the Dates to Remember section.

Starting with the February newsletter, all newsletters will now be posted online in addition to being mailed. If you would prefer to download it yourself and not receive a copy in the mail, let us know.

One announcement: The newsletter that was mailed had the incorrect date for the January CEO at PeiWei. It is actually Tuesday January 27th, not the 21st. The version posted here on the blog has the correct date.

We will be meeting Tuesday, January 27th at PeiWei (pronounced "pay-way") at New Market Square, 21st street and Maize Rd. We will meet at 6:30. If you would like to join us, please call in your reservation to Gayle Cloud at (316) 788-2531.

Thanks!

Staci

November 2009 Newsletter

2008-11-05T17:20:00.002-06:00

OK. We've been trying to find a way to post the newsletters online...

This is our first test of a possible solution. Below is the link to the newsletter being sent out this month.

http://www.box.net/shared/ik58lltx6h

Key Lime Pie from Outback Steakhouse!

2008-06-30T10:42:00.002-05:00

Outback Steakhouse has a Key Lime Pie. The normal crust is not gluten-free but Barb C. talked to a manager and provided them with a Gluten-Free Pecan Crust recipe. If you call at least 2 days in advance and talk to a manager, they are willing to make a pie with a gluten free crust so that you can order a slice of pie for desert.

I tried this and it is very good! Just remember to ask for a manager (Shawn, John, or Justin are the names I think). Also stress that it is the gluten free crust and make sure you talk with the manager when you go in for your meal/desert. A slice of pie is around $4.50 but it is a large slice.

I actually ordered whole pies. They charged me $30 plus tax per pie (and gave it to me in pieces), but it was worth it!

This is the Outback Steakhouse at 21st and Rock. The phone # is (316)634-6500.

Thanks Barb for thinking to ask about providing a GF Crust recipe!

-Staci

Food for Thought Gluten Free day

2008-06-13T12:28:00.001-05:00

Got this email from Food for Thought...Thought I would pass it along.

Hello!

I though I would pass on this event to your group:

Food for Thought will be hosting its monthly gluten free day on Saturday, July 28th from 10:00 a.m.-4:00 p.m. We have found a wonderful new supplier of gluten-free products and will be sampling many of these great new products and lines. New items include: ready to eat frozen products, the top gluten-free line from Europe (Schar), baking mixes, ready to eat cake & pies and much more. This event is a fabulous chance for individuals to sample gluten free products and hopefully find new favorites.

Hope you can make it and see how good gluten free can be!
Regards,

Melinda Foley
Food For Thought, Inc.
2929 East Central Avenue
Wichita, KS 67214
316-683-6078 phone
316-683-4141 fax

Thanks!

Staci

Gluten-Free products at Central and Rock Dillons

2008-04-22T13:59:00.002-05:00

I was at the Central and Rock Dillons this weekend and I was happy to find several things I've been looking for.

Bob's Red Mill Gluten Free Oats
Gluten Free Chicken Nuggets
Glutino Crackers (the round ones)

I knew this Dillons had a nice variety of GF stuff but I was very happy to find these 3 things.

Anyway, thought I would let everyone know.

-Staci

Food for Thought Guest Lecturer

2008-02-21T12:19:00.002-06:00

The chapter received an email from Food for Thought and they asked that we spread the word. So here is what we received:

Food for Thought Inc. will be hosting nationally-recognized author Karen DeFelice on Thursday, February 28th at 7:00 p.m. DeFelice will be speaking on enzymes for autism and other neurological conditions. During this presentation DeFelice will discuss the basics of enzyme therapy, the digestive process, various special diets (including gluten-free), nutrition and how it all works together. I am not certain this would be of interest to your entire group, but those with food or gluten-sensitivities (as opposed to CS) would definitely benefit. We would appreciate if you could share information about the upcoming lecture with interested individuals.

Individuals wishing to attend the lecture should sign up in advance. For more information or to register for this free event, please contact:
Food for Thought 2929 E Central or 683-6078

Finally, we try to host a gluten-free day one Saturday each month in order for our customers to have a chance to taste some of the gluten-free foods offered. We know taste is important, so we hope this give individuals a chance to try something without the commitment. Our event this month is February 23rd.

From the February Newsletter

2008-02-19T16:42:00.005-06:00

Annual Potluck Dinner
Our first meeting of 2008 is our potluck dinner. It will be held Saturday, March 8, at 1pm. The location is the East Evangelical Free Church at 14725 East Harry. Please bring one or two covered dishes and your own table service. Drinks will be provided. Please provide a recipe for each item. This is important for our members with other food allergies and also, if possible, we like to include the recipes from our meetings in the next newsletter.

Nancy Marrs from Homemade Gourmet will be talking to us about her company's gluten-free mixes and how they can be used to make home-cooked meals easier and faster to prepare.

Directions to the church: The church is located near 143rd St East and Harry. From Kellogg and K-96, go east about 1/3 mile to 143rd St, turn right(south) and go one mile to Harry. Turn left (east) on Harry and the church will be another 1/3 mile. It is on the south side of the road. Enter the church at the double doors on the east side of the church.

Renewal Time
It's time to pay dues for 2008. Our new year begins in January. If you want to continue to receive the newsletter and information about our meetings please bring $12 with you to the next meeting or contact Bev Eades for her address to mail it in, you can find Bev's email address under the contact info.

CEO's (Celiacs Eating Out)
We are planning three dinners out this year. Our first dinner is a pizza party at Bernie's Pizza at 2342 S. Maize Rd on Saturday April 19, 2008 at 2pm. No need to bring your own crusts, we will provide Nature's Hilights crusts at a cost of $3 each. Bernie has a way with a gluten-free crust and his pizzas are always marvelous. Please call Marty Weeks at 684-4017 with your reservation.

Mentors
The group feels it would be beneficial to develop a mentoring program to help those with celiac who have questions or need help with the diet between our scheduled meetings. If you would like to be a mentor or if you would like to have a mentor that you could contact with questions or concerns call Marty Weeks at 684-4017 or email her at martyweeks@cox.net

Prepared Gluten-Free Meals
This item didn't make it into the newsletter so I thought I would post it instead. I have a friend who cooks for me once a month and then puts everything in individual containers. Kinda like homemade tv dinners, all gluten-free. I generally decide on the menu and then she does the cooking.

My friend's name is Nancy and she is willing to cook for others, or at least sit down and figure out if it would work for you. The price would probably depend on how often and how long she cooks. You would supply the groceries (unless otherwise arranged) and she would most likely cook at your house to prevent cross-contamination, but since she currently only cooks for me, she is open to other arrangements. Whether you live by yourself and hate to cook (like me) or you have a family and don't have time to cook, this could be a good alternative to Simple Supers or Dream Dinners and other things like that were you may not have much to chose from. If you are interested give Nancy a call at 440-3934 and tell her you got her name from Staci.

She is not a celiac but she has been cooking for me since August and I have not had any problems. I just make sure I have groceries that are gluten-free and tell her what I want and what I want in it and she goes from there. Again, if you are interested give Nancy a call at 440-3934 and tell her you got her name from Staci.

Thanks!

Staci

Opportunity to submit comments on Digestive Disease Research

2008-02-18T11:39:00.002-06:00

Copied from an email I received from the National CSA:

The public is invited to make comments on Draft of Opportunities and Challenges in Digestive Diseases Research: Recommendations of the National Commission on Digestive Diseases

The Commission was chartered in July 2005 by Dr. Elias A. Zerhouni, Director, National Institutes of Health (NIH), and formed through public nominations. The Commission’s mission was to conduct an overview of the state-of-the-science in the field and to develop a digestive diseases research plan consistent with the research mission of NIH for submission to the NIH Director and to Congress.The research plan has been under development by the Commission since its initial meeting on June 12, 2006. Public Comment period ends March 8, 2008.

You can easily access the Draft report, the comments in support of the committee submitted by CSA and a sample letter for members to submit http://www.csaceliacs.org/DigestiveDiseasesResearchANNOUNCEMENT.php

This NIH committee report and public comments will influence research directions and funding.
CSA supports increased funding for NIH and encourages researchers to submit quality research proposals. A decreasing number of celiac disease research proposals have been submitted to the NIH since the NIH Consensus Development Conference on Celiac Disease in June of 2004.

-Thanks!

Staci

Doctors familiar with Celiac Disease

2008-01-03T19:12:00.000-06:00

We are trying to compile a list of doctors in Wichita and the surrounding areas that are familiar with the disease. If you know of a doctor that would be a good addition to the list please email us at WichitaCSA@yahoo.com. Please include the following information (if known):

Name
Phone #
Specialty (General Practice, Pediatrics, GI, etc)
Affiliation (Wichita Clinic, Wesley, etc)

Some of the most frequent questions we've been getting have been which doctors in Wichita are familiar with the disease and which ones do the different tests. Any information we can get would be appreciated.

Thanks guys!

Staci

BTW, our next meeting will be the potluck in March. Once the date is confirmed I'll post it.

Gluten Free Food Reviews

2007-12-02T14:17:00.000-06:00

I just found this blog: http://www.celiacfoodreviews.com/

It is a husband and wife that review various gluten free foods. Evidently the husband is the celiac. I thought it was interesting. Check it out!

-Staci

2008 planning meeting and tidbits

2007-10-29T16:34:00.000-05:00

We met Saturday October 20, 2007 and had a very productive meeting. We got all the 2008 meetings and CEOs planned (tentatively) and we were able to come up with some ideas for the 2008 newsletters as well.

The 2008 meetings will be in March, June, September and December.
2008 CEOs will be in April, July and October.

As soon as the dates are firmed up I'll add them to the Dates to Remember section (look on the right of this page). If there is anything you would like to see on the blog or a question you would like answered, email me at the chapter email address. Be sure to put CELIAC in the subject.

We have a couple ideas for Celiac Awareness Month next year. If you have an idea you would like to share please email.

Also, the National CSA has added a link to our blog under our chapter's info on their website.

That's it for now. Just wanted to give a little info.

Thanks!

Staci

Gluten Free Seminar

2007-10-11T14:40:00.000-05:00

Green Acres is having another seminar. From the Green Acres website:

"Why Gluten-Free?" with Pamela Giusto-Sorrells, Entrepreneur and Gluten-Free Baker
October 18, 2007 - Thursday, 7:00 - 9:00 pm at Wichita Marriott Hotel

Come and meet Pamela, from Pamela's Products, a leader in great tasting, all natural, wheat-free, gluten-free foods. Pamela represents the third generation in her family who had dedicated her passion to creating foods for people with allergies and food intolerances.

Food sampling and tasting included in this event! Don't miss this extraordinary opportunity to meet Pamela!

*Please note that this Free Seminar will take place at Wichita Marriott Hotel, 9100 E Corporate Hills Drive.

Call 316-634-1088 to register. Seating is limited.

For more info go to the Green Acres website: http://www.greenacres.com/

Article about celiac in Newsweek!

2007-09-20T17:26:00.000-05:00

Here is a link to an article in Newsweek about Celiac Disease.

http://www.msnbc.msn.com/id/20643573/site/newsweek/page/0/

Thanks for letting us know Marty!

National Celiac Disease Awareness Day

2007-09-20T17:19:00.000-05:00

It's a little late but I thought I would post this.

I received this in an email from National CSA:

To: All CSA Members
From: Mary Schluckebier, CSA Executive Director

September 13, 2007 is Official National Celiac Disease Awareness Day.

S.RES.314 resolution designating September 13, 2007, as "National Celiac Disease Awareness Day" was passed by the US Senate by unanimous consent, Monday September 10, 2007. September 13th is the anniversary of the birth of Samuel Gee, the father of modern Celiac Disease.

For the second year CSA has worked on your behalf with the Senatorial staff and offices leading to the Senate designation of a National Celiac Disease Awareness Day.
The resolution was introduced by Senator James Inhofe of Oklahoma and Senator Ben Nelson of Nebraska . The resolution is reprinted below from http://thomas.loc.gov/cgi-bin/query/z?c110:S.RES.314:

######
TEXT OF NATIONAL CELIAC DISEASE AWARENESS DAY

110th CONGRESS 1st Session S. RES. 314
Designating September 13, 2007, as `National Celiac Disease Awareness Day'.

IN THE SENATE OF THE UNITED STATES
September 10, 2007
Mr. INHOFE (for himself and Mr. NELSON of Nebraska ) submitted the following resolution; which was considered and agreed to
---------------------------------------------------------------------------
RESOLUTION
Designating September 13, 2007, as `National Celiac Disease Awareness Day'.

Whereas celiac disease affects approximately 1 in every 130 people in the United States , for a total of 3,000,000 people;

Whereas the majority of people with celiac disease have yet to be diagnosed;

Whereas celiac disease is a chronic inflammatory disorder that is classified as both an autoimmune condition and a genetic condition;

Whereas celiac disease causes damage to the lining of the small intestine, which results in overall malnutrition;

Whereas, when a person with celiac disease consumes foods that contain certain protein fractions, that person suffers a cell-mediated immune response that damages the villi of the small intestine, interfering with the absorption of nutrients in food and the effectiveness of medications;

Whereas these problematic protein fractions are found in wheat, barley, rye, and oats, which are used to produce many foods, medications, and vitamins;

Whereas because celiac disease is a genetic disease, there is an increased incidence of celiac disease in families with a known history of celiac disease;

Whereas celiac disease is underdiagnosed because the symptoms can be attributed to other conditions and are easily overlooked by doctors and patients;

Whereas, as recently as 2000, the average person with celiac disease waited 11 years for a correct diagnosis;

Whereas 1/2 of all people with celiac disease do not show symptoms of the disease;

Whereas celiac disease is diagnosed by tests that measure the blood for abnormally high levels of the antibodies of immunoglobulin A, anti-tissue transglutaminase, and IgA anti-endomysium antibodies;

Whereas celiac disease can only be treated by implementing a diet free of wheat, barley, rye, and oats, often called a `gluten-free diet';

Whereas a delay in the diagnosis of celiac disease can result in damage to the small intestine, which leads to an increased risk for malnutrition, anemia, lymphoma, adenocarcinoma, osteoporosis, miscarriage, congenital malformation, short stature, and disorders of skin and other organs;

Whereas celiac disease is linked to many autoimmune disorders, including thyroid disease, systemic lupus erythematosus, type 1 diabetes, liver disease, collagen vascular disease, rheumatoid arthritis, and Sjogren's syndrome;

Whereas the connection between celiac disease and diet was first established by Dr. Samuel Gee, who wrote, `if the patient can be cured at all, it must be by means of diet';

Whereas Dr. Samuel Gee was born on September 13, 1839; and

Whereas the Senate is an institution that can raise awareness in the general public and the medical community of celiac disease: Now, therefore, be it

Resolved, That the Senate--

(1) designates September 13, 2007, as `National Celiac Disease Awareness Day';

(2) recognizes that all people of the United States should become more informed and aware of celiac disease;

(3) calls upon the people of the United States to observe the date with appropriate ceremonies and activities; and

(4) respectfully requests the Secretary of the Senate to transmit a copy of this resolution to the Celiac Sprue Association, the American Celiac Society, the Celiac Disease Foundation, the Gluten Intolerance Group of North America , and the Oklahoma Celiac Support Group No. 5 of the Celiac Sprue Association.

Green Acres Sampling (revised)

2007-09-18T16:25:00.000-05:00

On Thursday, September 20th, Green Acres health food store at 21st street and Rock Road in Bradley Fair, will be hosting an in-store seminar titled "Let's Learn About Gluten Sensitivity." The seminar is from 7:00 to 8:30 p.m. Jackie Miller will lead an interactive discussion about following a gluten-free diet. Participants will have the opportunity to sample gluten free food items and will be offered the chance to share with others the secrets that they have learned for living with this condition.

Seating is limited-call 634-1088 to register

Sample post

2007-07-12T19:00:00.000-05:00

This is what a post would look like. I can type up the meeting notes and post them. Or we can make announcements on changes to meetings or CEO outings. Or even just make an announcement or ask a question.

For example: Don't forget books checked out from the Lending Library are due at the next meeting. The next meeting is on Thursday July 26 at 630p...