Tuesday, August 27, 2019

I haven't made any new posts for quite awhile due to my brothers' sudden death.  I thought he would outlive  us siblings.  He became suddenly sick, was diagnosed with terminal pancreatic cancer and died about 6wks. later!  A lot of the gastrointestinal cancers are related to celiac disease.  I wonder how many blood-related  families get tested after the first person gets diagnosed with celiac.

Someone tried a new Wichita doctor and related a family history of celiac.  This young doctor said we don't  test for celiac unless the patient has stomach pain!  I guess that leaves out all of you with:  migraines, joint pain,  skin problems, liver problems, learning problems,  in fertility etc.  There are 300 symptoms now associated with celiac.  As patients that have to live in our bodies, we need to be educated in spite of our doctors not knowing the symptoms.  I guess I was lucky that I had the classic belly problems.  I am sure if I was still eating gluten these last 19 years I would have been disabled or not even alive!